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    Examining the relationship between symptoms watched in lung cancer patients and illness perception
    (Pakistan Medical Assoc, 2022) Ugur, Ozlem; Karadag, Ezgi; Mert, Hatice; Sahin, Cansu Kosar; Gurel, Tugba Yardimci; Karakus, Haydar Soydaner
    Objective: To examine the relationship between the symptom experience of lung cancer patients and their illness perception of the disease. Methods: The descriptive and cross-sectional study was conducted from April to September 2015 at the Chemotherapy Treatment Centre of the Medicine Chest Diseases Clinic at the Ege University, Izmir, Turkey, and comprised lung cancer patients of either gender aged >18 years. Data was collected using a predesigned Patient Questionnaire as well as the standard Lung Cancer Symptom Scale, Illness Perception Questionnaire and Karnofsky Performance Scale. The patients' sociodemographic characteristics and data on their illness, the symptoms they experienced and the numerical and percentage distribution of the items on the illness perception scale, mean and standard deviation values were examined. Pearson Correlation analysis was used to examine the correlation between illness perception and Karnofsky Performance Scale scores and other variables. Results: Of the 105 patients, 86(81.9%) were males, 86(81.9%) were married, 49(46.7%) were elementary school graduates, 101(96.2%) were unemployed, and 95(90.5%) were receiving chemotherapy. The overall mean age of the sample was 61.43 +/- 8.24 years, the period since diagnosis was 11.38 +/- 17.84 months, and the duration of chemotherapy was 4.28 +/- 2.37 months. The mean symptom burden score was 22.75 +/- 10.85 and the Lung Cancer Symptom Scale score was 22.75 +/- 10.85. The mean score of the type of illness domain was 5.53 +/- 2.12. The overall mean global quality of life score was 64.30 +/- 12.60. Conclusions: As the symptom burden experienced by the lung cancer patients increased, their perception of the illness became more negative, and the longer the cyclical periods and the period of diagnosis, the patients' control over their illness decreased.
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    Individual-Level Determinants of Self-Care Behaviors and Adaptation to Chronic Illness in Turkish Patients With Chronic Disease: A Single-Center Cross-Sectional Study
    (Dove Medical Press Ltd, 2025) Kilic, Yasin Furkan; Gurel, Tugba Yardimci
    Purpose: The study aimed to investigate the relationship between self-care management behaviors of individuals with chronic disease and their adaptation to chronic illness. Methods: This cross-sectional and correlational study was conducted with 312 patients treated at a Training and Research Hospital in Turkey between December 2023 and March 2024. The data were collected using a Sociodemographic Characteristics Form, the Self- Care Management Scale in Chronic Illness (SCMP-G) and the Adaptation to Chronic Illness Scale (ACIS). Results: Mean total scores of the participants for SCMP-G were 107.52 +/- 12.51 and 77.00 +/- 10.00 for ACIS. There was a low-level negative correlation between age and chronic disease adaptation (rh = -0.201; P < 0.001). Adaptation to chronic illness decreased with increasing age. There was a low-level negative correlation between BMI and physical adaptation (rh = -0.127; P = 0.026) and self- guarding (rh = -0.114; P = 0.046). As BMI increased, physical adaptation and self-guarding decreased. Regression analyses revealed that age (beta = -0.115, t = -0.511, P < 0.05) and economic status (beta = 2.698, t = -2.487, P < 0.05) had a significant effect on adaptation to chronic illness. Multiple regression analysis of the effect of self-guarding and social guarding variables on adaptation to chronic illness was significant (F = 3.504, P < 0.05). Conclusion: Based on the results of the present study, self-care management behaviors have a significant effect on adaptation to chronic illness and individual characteristics affect the results. Individual assistance should be extended to the patients to develop self- care management behaviors, which can induce lifestyle changes and necessary trainings should be planned. Future research should prioritize evaluating nurse-led interdisciplinary interventions and exploring the impact of tailored strategies for specific chronic conditions to improve self-care and adaptation.
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    Understanding Family Members in the Palliative Phases of Their Loved Ones
    (Lippincott Williams & Wilkins, 2024) Gurel, Tugba Yardimci; Mert, Hatice
    Because of aging and rising rates of chronic diseases, the demand for palliative care services is increasing worldwide, and patients need family members to care for them throughout the palliative care process. This study aimed to investigate the experiences of the relatives of palliative care patients during hospitalization. This was a qualitative study conducted with 15 family members. A topic guide was used to conduct semistructured face-to-face interviews. Content analysis was used to analyze the textual data. As a result of the analysis, 3 main themes, 6 categories, and 24 subcategories emerged. The main themes were reactions to the admission, feeling obligated to care, and coping processes. The interviews revealed that most participants had misconceptions and a lack of knowledge about palliative care. Almost all of the family members expressed that they experienced various emotions during this process and had trouble coping. The significant finding of our study is that culture and religious beliefs have a considerable influence on caregiving. A limited number of studies in the literature provide detailed insight into the state of patient relatives. Therefore, this study is critical in guiding palliative care professionals in understanding the requirements of this vulnerable group.